Friday, December 20, 2013

Information Overload

Tonight Sinatra was full of smiles as she ate dinner.


Today we began the two year treatment journey to fight to cure Sinatras Leukemia.
We received a more detailed diagnosis today of Sinatra’s Leukemia. We found out that she has A.L.L (Acute Lymphoblastic Leukemia) B-type.  
Sinatra had a procedure to implant a port (PICC Line or peripherally inserted central catheter) into her chest for future chemo therapy treatments. In addition to the PICC being implanted, Sinatra had a spinal tap done to pull spinal fluid for testing, and they also injected chemo therapy into the spinal column. This procedure took two hours to complete. 

As we waited patiently for news that her surgery was complete the surgeon comes walking out into the waiting room to see us. Our hearts sank and we worried that something was wrong. Luckily the surgeon only wanted to tell us that things went well, but long, because the line had a hard time going down the proper artery for some reason. They did get it installed properly after a few attempts.
Sinatra ate like a champ again and then went right to sleep.

We also had a parent/doctor meeting today with our Primary Doctor, Dr. Huynh. She did a phenomenal job sharing with us the layman's terms around Leukemia and what it means practically speaking once we go home. The staff here is so knowledgeable and caring and we know we are in such great hands.

We have taken in so much information and are beginning to right everything down. The knowledge helps us feel more informed and maybe in some ways feel like we have have some control over something in all of this, but there is just so much. Tomorrow Sinatra starts her chemo therapy treatment. It will be three stages and take about 24 months. 

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