She PASSED, but with a C.

The long awaited results of Sinatra's marrow test are in and Sinatra passed her MRD test!!

Even though she passed the results weren't the .01 that we had hoped for but were higher at a .11. This again is a roller coaster of emotions because we really felt confident that Sinatra would pass this with a .01.  Even though these results aren't ideal, they are good enough to move her ahead to the next round of chemo. However we now have to start the conversation that we were dreading, a possible bone marrow transplant.  The transplant conversation is very early but Dr. Huynh wanted to us to start the process to be prepared in case we need to go that route in the next few months.  We will both get tested and well as Siena to see if we are a match, and our doctor will begin to explore the database to see if there might be a match out there as well.  If we aren't a match we will let you all know in case you ever considered being tested.

We will begin the Consolidation phase on Monday and after 60 days in that treatment plan, with two different rounds of chemo we will have another bone marrow aspiration to test her MRD again. This time she must have a .01 or lower or else the transplant discussion becomes more than just a discussion.  

Today we also found out which treatment plan we will be following. As discussed in our previous post we had the option of staying on study which gave us 3 different plan options (randomly selected).  We decided to stay on study after a lot of thought and a long question and answer session with the doctor today.  Once we decided, she was able to confirm that we were randomized to the experimental arm #1. This is the medium intensity treatment plan that has an additional two medicines introduced into the plan. It is a pretty intense treatment plan which starts next Monday and has 4 days in a row of chemo treatments for the first two weeks. The first treatment of the 4 day sessions will require Sinatra to be at the clinic for the entire day to monitor her vitals and keep her hydrated with IV liquids.

Sinatra reading her MRD results!

For some more upbeat news.  Sinatra is doing so good now that she is off steroids.  She is so happy and is laughing and playing constantly.  She only woke up once last night which was her best night since being on chemo therapy. When she weighed in today she had lost about 1 pound since last Friday which is great.  We also had the wound care specialist look at her rash again and it seems that her horrific diaper rash is getting much better. All of these little wins throughout her treatment feel great and keep us optimistic.

We will be adding a tab in the blog that outlines her treatment to give a more comprehensive view of the whole plan and will be easier to follow. Stay tuned for that.