On the mend, but..................very...............slowly...

So here we are, night number five, still in the hospital after thinking everyday this week that we might be coming home. Sinatra is on the mend, but her blood counts were hit pretty hard with this RSV and are taking a little while to climb back up. Her cough is better, she seems happy, has negative cultures, and hasn't run a temperature since Monday morning but her white blood count and ANC are still too low to get discharged.

We are going a little stir crazy because we still aren't able to leave our less than 100 square foot hospital room and during flu season we cant have any visitors (until March 31st). We are pretty sure that Sinatra has played with just about every toy that the hospital has on this floor and we spend at least half of the day by the window looking outside. Some days she has resorted to playing with a cup filled with coffee creamer packages and the handles on the hospital crib that make the mattress go up and down. Desperate times.

Sinatra's play space in our room

In thinking about going home, we have spent some time talking about tweaking our strategy to help minimize the spread of illness as best we can by creating some separation for the girls and trying to teach them to wear masks when someone is sick. Seems like a stretch but it could be really helpful if we could get the girls to be okay with it. 

One major tricky part about all of this is that we are both still working (trying) and we are trying to figure out how to get our work done through calls, meetings, etc when things are just so difficult to plan.  This week for example, we both had a very defined plan of who was where, on what days, at what hours, but the fever hit Sunday and our week has been shot since. We both have quite a bit of anxiety about how to manage everything and do the best we can. Thanks to all that are reading this that are impacted by our crazy reschedule requests and inability to plan. XO